Gift For Gavin.org: We're Home!

{ Hello! }

My name is Gavin. I am 11 months old. I was born with a genetic disorder called Alpha-1 Antitrypsin Deficiency that caused my liver to go into failure. I was misdiagnosed for 3 months and underwent emergency surgery before they found out what was wrong. I am on the Organ Donation List and am waiting for my "gift of life" so I can have a liver transplant. You can read about my story by clicking {here}. Thank you for visiting my online journal!

*It is our deepest sorrow to inform you that Gavin passed away while waiting to receive a liver transplant. He was only 14 days away from his 1st birthday. Please, if you haven't already, sign up to be a registered organ donor today and talk to your loved ones about your wishes: http://www.donatelife.net/. Thank you all so much for your love and support during this last year.

Thursday, May 22, 2008

We're Home!

Just wanted to let everyone know that we got in late Wednesday afternoon and it feels so good to be home! :) We learned how to give Gavin his antibiotics, and the first night was overwhelming, but I think we got that hang of it. We're still totally sleep deprived, but thankfully we only have to do the antibiotics for 6 days...so there's light at the end of the tunnel.