{ Hello! }

My name is Gavin. I am 11 months old. I was born with a genetic disorder called Alpha-1 Antitrypsin Deficiency that caused my liver to go into failure. I was misdiagnosed for 3 months and underwent emergency surgery before they found out what was wrong. I am on the Organ Donation List and am waiting for my "gift of life" so I can have a liver transplant. You can read about my story by clicking {here}. Thank you for visiting my online journal!

*It is our deepest sorrow to inform you that Gavin passed away while waiting to receive a liver transplant. He was only 14 days away from his 1st birthday. Please, if you haven't already, sign up to be a registered organ donor today and talk to your loved ones about your wishes: http://www.donatelife.net/. Thank you all so much for your love and support during this last year.

{ This is my family }

{ This is my family }

{ A Mother's Plea }

If you only read one thing on this website, let it be {this}.

Wednesday, September 10, 2008

3rd time was not a charm

We got another offer this evening while we were here. Everyone was hopeful, his whole team came in to talk to us. We just heard it was a no go. Too big. Again. This time was much harder than last time. Its harder to numb out the feelings. And we're HERE this time...and we're not going to be able to just come home tomorrow. Doc says we'll probably be here into next week.

How is this ever going to work? He is just so small. But what does that leave me to hope for? For a smaller child to die? Its just horrible. Its a horrible position to be in. I wish it didn't work this way.

Losing hope...trying hard not to, but inside I am. Maybe that's not the best way to describe it. I'm sure I'll feel better in the morning, but tonight is going to be hard.

5 comments:

Erin said...

I am so sorry! I can't even imagine the pain you guys are in. It's hard to remember but it will happen when the time is right and everything will work out the way it's supposed to. Your family is in our thoughts and prayers. Please let us know if we can do anything for you.

Anonymous said...

I'm sorry to hear that Andre. I hope everything turns out well for your family and especially Gavin. We are all here for you.

The Lindsey's said...

Bethany,
I'm so sorry you guys are having to go through this. You're so strong. I want to cry some for you... I wish I could do something to help. *big hug*

Becky said...

Oh Bethany!! I am so sorry, what a predicament!!! We're praying for and thinking of you guys. Good luck with everything! Hang in there.

Jennifer Smith said...

Bethany, you and your family are in my thoughts and prayers.