Gavin made some good progress yesterday, he was down to a 23 on the oscillator, and off both drugs that were keeping his heart rate and blood pressure stable. But by tonight they had to switch the oscillator back up to a 28, where it was Monday evening when I first got here, and had to restart the med for his blood pressure again. He also had more blood in the samples from his lungs again. If this fungus did start in his lungs like they think, that means its been there for over a month and has done a lot of damage.
Its so disheartening. I am so worried about him. I just wish I could fast forward through the rest of the week and see him off these vents and awake. Its so hard just sitting here waiting, and then having his progress undone. Its like the last two days didn't count. Fungal infections are so hard to treat, and on top of everything else...it just feels like drowning.
There has still been nothing growing out of his cultures. They did an ultrasound of his head just to make sure he was not bleeding in his brain. They had no reason to think he was, but they wanted to check just in case since is he having bleeding in other places and its easy to do an ultrasound without bothering him anyway. He hasn't needed blood products at all today though, so that was good.
They changed his sheets today, put in new tubing on all his stuff and washed his hair, so that was nice. I have been playing music for him today to help relax him...like Enya, nature-y stuff.
Thank you to all those who fasted and prayed for Gavin today, we really appreciated it.
{ This is my family }
Wednesday, September 17, 2008
Two steps back...
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8 comments:
i've never left a comment. there is so much in my heart, it's hard to find the words to express my thoughts and feelings about what you are going through. i read your words and i "remember." i hope you can read between the lines because words fail me.
you are always in my thoughts and prayers. may you have moments of peace when you feel the Lord's arms around you and sweet Gavin.
love,
nancy
I've been thinking about you guys like crazy and praying for you. Thanks for the update. Let's hope that tomorrow we see some good results to all the fasting and prayers. I know the Lord is mindful of you. You are amazing Bethany and I can't tell you how much I appreciate your updates and your views on things. You have strengthened our family. Hopefully since today was 2 steps back tomorrow will be the good day that is so very well deserved.
Hi guys - I just wanted to let you know that I was out of town with James' family for a week while he stayed home. His cell phone wasn't working, so we didn't get your message about Gavin until this morning. I told James to give Andre a call ASAP.
I will keep all of you in my prayers. You are all so strong.
Sharon Anderson
We send our love, especially to you and Andre. I wish with all of my heart that we could send healing. Guenevere, Eric, Leif, Lars.
I saw this today:
Hope is the anticipation that the outcome will be good.
Worry is the anticipation that the outcome will be bad.
Faith is the anticipation that whatever the outcome, it will be for our good.
I've had all 3 thoughts as I think of Gavin...as I'm sure you have...but I know that Faith is what we need to TRY and focus on.
I LOVE YOU!
We love you guys and are praying for you! Thanks for the update!
Our family is continuing to pray for your family.
Oh how we ache for you. Know that we are thinking of, praying for, and loving you guys. A lot.
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