{ Hello! }

My name is Gavin. I am 11 months old. I was born with a genetic disorder called Alpha-1 Antitrypsin Deficiency that caused my liver to go into failure. I was misdiagnosed for 3 months and underwent emergency surgery before they found out what was wrong. I am on the Organ Donation List and am waiting for my "gift of life" so I can have a liver transplant. You can read about my story by clicking {here}. Thank you for visiting my online journal!

*It is our deepest sorrow to inform you that Gavin passed away while waiting to receive a liver transplant. He was only 14 days away from his 1st birthday. Please, if you haven't already, sign up to be a registered organ donor today and talk to your loved ones about your wishes: http://www.donatelife.net/. Thank you all so much for your love and support during this last year.

{ This is my family }

{ This is my family }

{ A Mother's Plea }

If you only read one thing on this website, let it be {this}.

Sunday, November 02, 2008

Book for Gavin


I am putting a small book together with pictures and stories about Gavin (mostly for his silblings, but also for us!). I read about the idea from another mom who had lost a child and she said it helped her other children remember their sibling. I thought it was a nice idea since Joenick and Evienne are so young and we might forget a lot of these special little stories over the years. I want them to be able to know Gavin as others knew him and to be able to sit down with the book whenever they miss him or want to feel to close him.

If anyone has any small experience or story that involves Gavin...just anything, can be funny, sweet, spiritual, a description of a time you spent together with him, things you remember about him, first impressions, etc, any small memory at all...if you could just jot it down real quick sometime this week and email it to me, I would really appreciate it. (The kids would be especially thrilled to read stories that involve them, too, if you have any!) If you have more than one, you can send them all! They don't have to be written "perfectly" just write whatever comes to you. They can be just a few lines or as long as you want.

Stories can be sent to: info@giftforgavin.org.


Thanks so much!


2 comments:

Anonymous said...

I wish I had met Gavin in person.

But I will never forget his sweet, sweet smile nor the stories you have told us about him that make me feel as if I had actually met him...

The idea of the book is wonderful.

With all my best wishes for your whole family,
Sven (from LF)

Anonymous said...

We never met Gavin but we followed his story very closely. My husband and I followed his story and prayed for your family. One day my husband called me and told me he saw you guys at Cafe Rio with Gavin. He kept saying it's Baby Gavin. I immediately began crying, wishing I could see him. I asked him to tell me what he looked like. He told me that he was beautiful and that he looked like an angel. He didn't get to say anything to you guys but he told me he was beautiful and perfect. We are still praying for your family! Our Love, The Aston Family