{ Hello! }

My name is Gavin. I am 11 months old. I was born with a genetic disorder called Alpha-1 Antitrypsin Deficiency that caused my liver to go into failure. I was misdiagnosed for 3 months and underwent emergency surgery before they found out what was wrong. I am on the Organ Donation List and am waiting for my "gift of life" so I can have a liver transplant. You can read about my story by clicking {here}. Thank you for visiting my online journal!

*It is our deepest sorrow to inform you that Gavin passed away while waiting to receive a liver transplant. He was only 14 days away from his 1st birthday. Please, if you haven't already, sign up to be a registered organ donor today and talk to your loved ones about your wishes: http://www.donatelife.net/. Thank you all so much for your love and support during this last year.

{ This is my family }

{ This is my family }

{ A Mother's Plea }

If you only read one thing on this website, let it be {this}.

Friday, January 11, 2008

What started it all...{part 4} "OUT!!!"

{I copied and pasted these entries from our family blog way back when I originally posted them!}

Gavin is out of surgery and is doing fine.

We just got to go back and see him...he is groggy, but okay. He didn't have the Kasai procedure, meaning he had all his parts and nothing was missing!!! They didnt see any blockages either, but they did say his gallbladder had bile in it, so they got that out. He said his liver didn't look "too bad" (but they have also been telling us that they cant tell by looking...so we'll see).

They did the liver biopsy and we'll results in a few days. I guess we're still back at point 1 trying to figure out what is wrong, but we'll talk to the specialist later and see what he has to say.

Otherwise, I feel like Im about to faint...it took about 2 hours and although i *did not* cry (likje I promised myself I wouldnt) I was pretty close to the dge towards the end there.

Gavin slept really well all through the night...Andre and I left the hospital around 11pm and Andre's mom stayed with him through the night so we could sleep at home, and we came back at 5am this morning. He slept all the way up until the nurse took him back to the OR. We were SO GRATEFUL. It was what I had prayed for, it was such a blessing that he wasn't screaming during our last moments with him. (I think I wouldve cried then).

Anyway, I am typing this from the recovery room on their computer so I better get off...more info to floow. I just cant say thank you enough to everyone for fasting and praying for him.

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