Gift For Gavin.org: What started it all...{part 3} "Surgery still on schedule"

{ Hello! }

My name is Gavin. I am 11 months old. I was born with a genetic disorder called Alpha-1 Antitrypsin Deficiency that caused my liver to go into failure. I was misdiagnosed for 3 months and underwent emergency surgery before they found out what was wrong. I am on the Organ Donation List and am waiting for my "gift of life" so I can have a liver transplant. You can read about my story by clicking {here}. Thank you for visiting my online journal!

*It is our deepest sorrow to inform you that Gavin passed away while waiting to receive a liver transplant. He was only 14 days away from his 1st birthday. Please, if you haven't already, sign up to be a registered organ donor today and talk to your loved ones about your wishes: http://www.donatelife.net/. Thank you all so much for your love and support during this last year.

Thursday, January 10, 2008

What started it all...{part 3} "Surgery still on schedule"

{I copied and pasted these entries from our family blog way back when I originally posted them!}

They did the scans, and it still didn't show any bowel movement (indicating a blockage) so they will be doing surgery tomorrow (Friday) at 8am.

They still aren't sure what/where/how it is, and if he had been younger they might've just done a biopsy first and waited for the results. But that would take 3-4 days, and they don't want to waste any time.

We are really apprehensive and scared, but both the surgeon and the specialist talked with us today and reassured us. The surgeon said he has sent home every baby he has operated in the last 30 years, so that was comforting to hear.

Today has been extremely rough. Gavin had to fast this morning for his scan, so he couldnt eat from 7am-10:30am, and then they surgeon came in around noon and said he had to fast the rest of the day and night until the surgery tomorrow. So he has only eaten once today and will be fasting for straight 20 hours. They can't give him anything to get through the night...no medications to help him sleep, not even water. He jsut keeps crying and crying. :(

To make it worse, his IV wrappings came loose this afternoon and we didn't realize it for a good 15 minutes before I saw him bedning his arm and realized why he was crying (we just thought he was hungry). So the tubing came loose and all the saline pooled up under his skin and they had to take it out and redo it. They couldn't get it on his hand, so they had to take it out and try again in his ankle. Poor little guy is having a really rough day. :'( Its breaking my heart. I just don't want him to hurt anymore.

I'm about to leave and go home to sleep for a few hours b/c otherwise I will kill someone here. I feel like I'm going crazy.Hopefully some rest will revive me and tonight they are blessing Gavin...I really need to feel that Spirit right now.

Thank you to everyone who fasted today...and hey, if you are an overachiever, feel free to fast again tomorrow! We will definitely be praying all night and tomorrow morning, too. Thank you, thank you, thank you. We appreciate this so much.

{ read part 4 }