{ Hello! }

My name is Gavin. I am 11 months old. I was born with a genetic disorder called Alpha-1 Antitrypsin Deficiency that caused my liver to go into failure. I was misdiagnosed for 3 months and underwent emergency surgery before they found out what was wrong. I am on the Organ Donation List and am waiting for my "gift of life" so I can have a liver transplant. You can read about my story by clicking {here}. Thank you for visiting my online journal!

*It is our deepest sorrow to inform you that Gavin passed away while waiting to receive a liver transplant. He was only 14 days away from his 1st birthday. Please, if you haven't already, sign up to be a registered organ donor today and talk to your loved ones about your wishes: http://www.donatelife.net/. Thank you all so much for your love and support during this last year.

{ This is my family }

{ This is my family }

{ A Mother's Plea }

If you only read one thing on this website, let it be {this}.

Monday, July 07, 2008

Back in the hospital...AGAIN!!!

One night out...and right back in. I never even got a chance to update his blog and say that he came home from ths hospital last night, and now he's already going back in!!!! Gavin's broviac is clogged somehow. They couldn't even get the medicine in it to try and break it up, like they did last time. Wouldn't budge at all!!! So the last resort is taking it out and replacing it. :( He was admitted this afternoon and he'll be going into surgery tomorrow morning. He'll probably be there the next 1-2 days.

This is how I feel: %$#^$(*^#$@$*^&#.

But I guess it could be worse. The nurses (who are in the process of adopting Gavin as their own) got us the "good room"...a really big, recently remodled room tucked back into a quiet corner. I guess we've got the hook-up now?! Thats what you get when you become frequent flyers! ;) Good thing I'm getting quite used to this!!!

1 comment:

Melody B. said...

I bet in the "#%&^%*$&*$" there were some cuss words...I know there would be for me! I swear, you AMAZE me with what and how you have dealt with all of this. I can't imagine how annoying, stressful, tiring, sad, frustrating (to just name a few) this whole experience must be for you. BUT, through it all you have remained faithful and determined to get through it all! YOU ROCK SISTA! Love you lots! Please call me and let me know how I can help!