{ Hello! }

My name is Gavin. I am 11 months old. I was born with a genetic disorder called Alpha-1 Antitrypsin Deficiency that caused my liver to go into failure. I was misdiagnosed for 3 months and underwent emergency surgery before they found out what was wrong. I am on the Organ Donation List and am waiting for my "gift of life" so I can have a liver transplant. You can read about my story by clicking {here}. Thank you for visiting my online journal!

*It is our deepest sorrow to inform you that Gavin passed away while waiting to receive a liver transplant. He was only 14 days away from his 1st birthday. Please, if you haven't already, sign up to be a registered organ donor today and talk to your loved ones about your wishes: http://www.donatelife.net/. Thank you all so much for your love and support during this last year.

{ This is my family }

{ This is my family }

{ A Mother's Plea }

If you only read one thing on this website, let it be {this}.

Friday, September 19, 2008

Friday Night

Gavin has had a good day. Everything has remained stable. Most of his numbers are looking better than yesterday. His urine output doubled after the drain was put in! That is so so so great. They will start weaning off the diruetic, which will also give his kidneys a break. Hopefully his urine output will remain the same, even without the extra drugs. That would be such a great step in the right direction. We are praying specifically that his kidney numbers look better in the morning, it is crucial for them to go back down at this point.

They are just letting him rest tonight, and not trying to wean him off the oscillator just yet. Hopefully it will be a quiet evening. We are praying that his little body will be able to heal and rest tonight, and tomorrow he will be ready to fight again. We hope and pray that tomorrow we will see more improvement as his lungs heal and are able to breathe more freely. We pray that this fungus hasn't spread to anywhere else in his body.

Two elders from the ward here in LA came to see us today and help give Gavin a blessing. They were so kind, and are arranging some meals for us this next week. I am so humbled by the willingness of their ward members to help a family they don't even know. We are hoping that maybe we can attend a meeting soon.

He is not out of the woods yet. He can, and probably will, still have some setbacks and bad days. But today he was stable. And right now that is the best blessing we can hope for. One step at a time...hour by hour, day by day.

It is a little scary, letting this hope creep back in after yesterday looked so grim. We are trying to hold onto it though, no matter what happens in the days to come. He can do this. He has made it this far. We have been in continual prayer of thanks to Heavenly Father for these blessings today. We are thankful for hope. We are thankful for the outpouring of love for our precious Gavin. We are thankful for one more day.

6 comments:

Melody B. said...

God is good.:) I am SO happy to hear of Gavin's "good" day.:) Like you said, "one step at a time..." towards getting healthy. Prayers continue and so does our faith...I love you.

Bret and Julie Burnham said...

Horray! We are so grateful that today went well. We will continue to pray for Gavin and your family. We love you!

Anonymous said...

I really wish you and your family all the best - Gavin is a gorgeous little boy and he will be in my thoughts. I really hope he gets well and gets his transplant. God bless xx

Colby Kids said...

This is a good update. Keep them coming. I think about Gavin all the time. Hugs.

The Lindsey's said...

This is GREAT news. I can feel how relieved you are, and I can empathize with you. It really takes me back to when Jordan was struggling to get off her vent. It's so scary. We'll keep praying for you all. You're being watched over.

wyobuff said...

We are waiting anxiously for each little progress. Thanks for the updates, we appreciate them here in Wyoming.

Fred, Deb and Grandma Sprague