Saturday afternoon

Gavin had another stable night. They moved the oscillator down to 24. And they've turned down some of his meds, his blood gas is good, his blood pressure has been stable, and he is about half the size he was yesterday- he looks so much better! His kindey function numbers went down by one point.

He did develop a fever during the night, and it has been up and down all day today, but the infectious disease doctor is not too concerned about it. He said its totally normal for him to spike fevers during the first couple of weeks while he is fighting this infection. With ice packs they have been able to keep his temp under 100 so that is good.

His heart rate has been a bit high today around the 140's, so they have been adjusting his pain medication and his paralyzing meds. He has been really sensitive to the paralyzing drugs, so they have to keep moving it up and down...one hour he will be "too out of it" and the next he'll be twitching his toes and fingers and moving his chest. That is not good b/c then he fights against the oscillator which wears him out.

They are hoping to have him weaned off the oscillator by Monday. Please pray that his body can handle it! They will try turning him down to 23 this evening, and down to 21 tomorrow. We just pray pray pray that he will tolerate it this time.

I bought some books from the gift shop to read to him, the Golden Book Classics like the Pokey Puppy and The Little Red Caboose. We are trying to encourage him and talk to him a lot.

He is still "deeply, deeply in the woods" according to his doctors, but he is making baby steps in the right direction today. Today is the first day he has had a positive move forward, so hopefully it will stick. Two nights ago they were bringing up end of life options. So this is a small tip toe away from that. Thankfully that drain seems to have put that off for at least another day.

So today we have a lot to be thankful for. It doesn't mean that he can't back track or that tomorrow he couldn't crash again. Its really scary to think of that. We are all still holding our breath that the fungus hasn't spread anywhere else to his body, and that he can remain stable throughout the weekend. We are praying to thank our Heavenly Father for more time, and for the generous blessings we have received. We pray that Gavin can continue to move forward and his body will be able to heal and fight this infection. He still has a very long way to go.